Time to be Tired

Miss Megan is starting to be pretty tired and feeling fairly miserable again. She's sleeping 12 hours a night and now today she's only been up for 90 minutes to eat and take her medicine and is back asleep again. Yesterday we had to go back to St. John's to see the oncologist because her shoulder was hurting so bad she could hardly move it. He gave her a muscle relaxer prescription, which did help some last night. Her vision is getting worse again, very blurry for the TV and reading, and it seems like her right eye is starting to look a little more cross-eyed, like it is tending to go in toward her nose a bit more. The oncologist wants us to see an opthomologist while we're at MD Anderson. She's getting pretty naucous too, so we had to have another prescription for Zofran. Now yesterday and today she's had nose bleeds, I guess from the blood thinners.

She's had blood draws twice a week for the past couple of weeks to keep checking to see if her blood is too thin. Each time the level has been too high, with her blood too thin, so they've kept reducing her medication amounts. Finally yesterday it was normal! However she's had the nose bleeds...so not sure what that is exactly about. We go back again on Monday to check it one more time before she leaves for Houston on Tuesday.

I talked with MD Anderson today and got the schedule for our first two days there. They said the next few days plans after that depend on the thyroid body scans, imaging study, blood work and ultrasound. So he hasn't scheduled her in-patient stay yet -- he waits to see the results and then schedules the next steps. I will say, they are very thorough and methodical. St. John's hadn't been quick about sending the pathology slides and imaging CD's and they called me to get on St. John's. The nurses at St. John's found out that the imaging department had forgotten to mail them...grrr...so they over nighted them and MDA got them yesterday. However, the slides had been sent to Siteman at Barnes, and they had to get them back from Barnes so they could go to MDA, and they still don't have them. Hmmm, wonder if I should just go get them and bring them with me on the plain or Saturday over night them??? A thought....so I just called St John's and put out that offer.

Oh now she's woken up again and her head is really hurting...more Dilaudid today...darn and she had finally been off the pain medicine for 2 weeks and now she's needed it the past 2 days...not good. :(