Feb. 12

Saturday we woke up fairly early, for us anyway, and both of us took showers and got up for the day. Megan was feeling much better and wanted to look at the computer again this morning. She's very excited to decorate the new bathroom. She's picked out a "PEACE" pattern from online at Target she loves. Very teenagerish. :)

In case you didn't know, around Labor Day, I started what I thought was a small project to remove some mold in the kids bathroom. When I got into it, it ended up being a huge project from the plumbing leaking behind the walls. So when Megan was diagnosed with Thyroid cancer, we found out that she had to have Radioactive Iodine treatments. They require that she be sequestered for a week and have her own bathroom because she will literally be radioactive. Sooo, here we are in the middle of being diagnosed with cancer and having major surgery, and we have to pick out all kind of things for a new bathroom. Luckily family and friends and pitched in to help get it all together. A huge thanks to Gary, Kate, Dan, Beth and Garth for all the help!!! So far it was completely gutted to studs, the copper all changed and fixed, put in a new subfloor, floor tile, drywall, the shower and tub. Megan helped pick out a lot of it and she's so excited to have a new bathroom all to herself. :0)

We had visits today from Carol and Brian, Deanna, Uncle Chris, Aunt Elizabeth, Dominic, Shiela and Shelby and the pediatrician. She really enjoyed being up more, having a light on part of the day and talking to people. The steroids are definitely making her a chatty Kathy! Towards the end of the day her headache started coming back a lot more and we had to go back to darkness.

The pediatrician was here for quite awhile and was so nice to bring us fruit smoothies from McDonalds and Pasta House salad and pasta for mom. YUM! Their was bad news though. Her husband is Kelsey's neurologist and the two doctors looked at their MRI's and agreed that they both looked very similiar. The neurologist thinks Megan has Tuberous Sclerosis Complex, just like Kelsey. The pediatrician called the neuro-Radiologist and talked with him about Megan's results and they both agreed - she has "tubers" or "white matter" on her brain, indicating probable TSC. The good news is that it explains all the white spots on her brain and makes the doctors feel better that she won't have a stroke. Later this week she will get kidney and heart ultrasounds to look for more tubers.